Together
FOR AWARENESS AND RESEARCH
We are looking for collaborations with other associations, foundations or institutions, both public and private, nationally and internationally. We know that the number of patients diagnosed with Nexmif is obviously larger abroad than in Italy, however It seems there’re very few associations dedicated to this syndrome worldwide. We also believe that many new Nexmif diagnoses will follow. Only by growing together, and above all by doing together, can we truly succeed in our mission. We work with:
- Alleanza Epilessie Rare e Complesse, a network of 16 Italian associations with the common objective of acting as a network to promote social, political and medical awareness of Rare and Complex Epilepsies.
- Alleanza Malattie Rare, a Technical Roundtable between patients, technicians and the institutional world: different subjects working together towards common objectives, without losing their specificity. The hope is to create a better system in our country.
- Fondazione Telethon, a great collective entity supporting people fighting against a rare genetic disease through science and research.
We cooperate with
associations, foundations and institutions
Join our network
Requirements
There is no typical identikit or CV for an ideal collaborator. We are not interested in qualifications or specific expertise, but just look for 3 simple gifts:
- Seriousness
- Goodwill
- Optimism