to bloom
to bloom
We believe
in Science
Unione Italiana Nexmif is a volunteer organization dedicated to people diagnosed with mutation in the gene Nexmif, with the dream of a cure.
We want all clinical aspects of the Nexmif encephalopathy to be treated
HELP US
Outreach
By making Nexmif mutation signs and symptoms known, we could incentivize new genetic tests and new diagnoses
Donations
Your contribution will help scientific research
Collaborations
Working together we will be able to reach unexpected goals
We raise funds to find a cure for
our children
37
mutations reported in the HGMD database
300
cases worldwide, known to our Organization
“
We must want the impossible, for the impossible to happen.
(HERACLITUS)
,
“
Our battered suitcases were piled on the sidewalk again; we had longer what’s to go. But no matter, the road is life.
(Jack Kerouac)
,
“
The journey begins where the heart beat meets the wind of fear.
(Fabrizio Resca)
,
Partnership & collaborations
Rare flowers to care for.
We believe.
Diagnosis
Research
Cure
We need you
Every little gesture can make a difference
We appreciate all kinds of support, from donations to collaborations or new ideas.
Write to us
Latest contents from our blog
news and updates
A hope for neurodevelopmental dysfunctions
IAMA Therapeutics, a start-up company that will develop a new drug candidate for neurodevelopmental dysfunctions such as autism spectrum disorders, is underway. It stems from the work of two research