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to bloom
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to bloom
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We believe
in Science
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Unione Italiana Nexmif is a volunteer organization dedicated to people diagnosed with mutation in the gene Nexmif, with the dream of a cure.
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We want all clinical aspects of the Nexmif encephalopathy to be treated
HELP US
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Outreach
By making Nexmif mutation signs and symptoms known, we could incentivize new genetic tests and new diagnoses
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Donations
Your contribution will help scientific research
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Collaborations
Working together we will be able to reach unexpected goals
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We raise funds to find a cure for
our children
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37
mutations reported in the HGMD database
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300
cases worldwide, known to our Organization
“
We must want the impossible, for the impossible to happen.
(HERACLITUS)
,
“
Our battered suitcases were piled on the sidewalk again; we had longer what’s to go. But no matter, the road is life.
(Jack Kerouac)
,
“
The journey begins where the heart beat meets the wind of fear.
(Fabrizio Resca)
,
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Partnership & collaborations
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Rare flowers to care for.
We believe.
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Diagnosis
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Research
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Cure
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We need you
Every little gesture can make a difference
We appreciate all kinds of support, from donations to collaborations or new ideas.
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Write to us
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Latest contents from our blog
news and updates
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A hope for neurodevelopmental dysfunctions
IAMA Therapeutics, a start-up company that will develop a new drug candidate for neurodevelopmental dysfunctions such as autism spectrum disorders, is underway. It stems from the work of two research